The Brain Injury Association of Delaware (biaofde.org) is holding its 23rd annual conference on March 13, 2014 at the Dover Downs Hotel & Conference Center. This full day conference includes four tracks to choose from. Each track includes two educational sessions.
Tracks include: Prevention Learning, Education Learning, Advocacy Learning and Support Learning.
A reduced price of admission is given to families and persons with a brain injury. Scholarships are also available as well as group rates.
For more information, call 1-800-411-0505 or email email@example.com.
Disability and obesity are complex public health challenges, but ones that offer major dividends to our country if effective strategies are successfully applied. The Centers for Disease Control and Prevention has published five new issue briefs that describe what people and organizations can do to help combat obesity among people with disabilities, and assist them in achieving healthy weight and an improved quality of life.
To view the five new healthy weight issue briefs visit http://go.usa.gov/Ba5B or click on one of the following links:
Tuesday, January 21 at 2:00 pm – 3:00 pm EST
Presenter: Samantha Crane
In December 2013, the Autistic Self Advocacy Network (ASAN) released a policy brief on addressing the health care needs of youth with autism and other developmental disabilities as they transition to adulthood.
Join this upcoming webinar to learn more as Samantha Crane, ASAN’s Director of Public Policy, discusses concepts from the brief. She will also provide recommendations to ensure that young adults with Intellectual and Developmental Disabilities (I/DD) receive consistent access to quality health care, as well as support in taking on adult levels of autonomy with respect to their own health care needs.
Wednesday, January 22nd at 2:00 pm – 3:00 pm EST
Presenter: Seth Keller, MD
Adults with intellectual or developmental disabilities often have complex and fragile medical difficulties including seizure disorders. Commonly, seizures are refractory to medication therapy and usage of multiple seizure medications, toxicities, ER visits and associated injuries may occur. The presentation will review these various challenges as well as the difficulties that also contribute to problems with diagnosis, testing, and therapies. Recommendations will be made to help ensure that better outcomes are achieved as well as improvements in quality of life.
Wednesday, January 29th at 2:00 pm – 3:00 pm EST
Presenter: Rob Moss
SeizureTracker.com is an innovative website dedicated to help individuals that have frequent seizures and epilepsy to understand the relationship between their seizures, medications/dosages and daily variables to help reduce seizure activity and understand the triggers. Rob Moss, the Co-Founder of SeizureTracker.com, will share some of the tools and personalized reports the system can generate to help empower patients about their medical needs. These reports can then be shared with your doctors to help them better understand and search for answers to your specific situation to improve daily living.
Wednesday, February 19th at 2:00 pm – 3:00 pm EST
Presenter: Candice Lee
Smoking is bad for your health. It’s a fact we have all known for a long time now, so why are so many of us still doing it? In this webinar, Candice Lee from the Michigan Dept. of Community Health will reveal the prevalence and patterns of tobacco use in individuals with intellectual and developmental disabilities (IDD). She will show the impact that tobacco use can have on your health, finances and other implications it can lead to. Tobacco cessation resources for individuals with IDD and ways to effectively communicate the important message for the need to quit smoking will be given.
This comes from our friends at Yes U Can USA
Join our wheelchair basketball team, the ‘Delaware Destroyers.’
How do I qualify to play? As long as you CANNOT play stand-up basketball, then join our team. Whether you have a disability or a knee injury, if it prevents you from playing stand-up basketball, then satisfy your athletic drive by joining the Delaware Destroyers. You can do it. You’ll just do it differently.
Season runs October 1st – March with practice held throughout the year.
For more information contact: John Pellegrino @ 302-690-3481 or firstname.lastname@example.org.
Participants in the Transition of Care video series gathered for a red carpet premiere.
The transition from adolescence to independent young adulthood can be an especially challenging time for those with special health care needs. A great deal of planning and forethought is needed to help these patients move from pediatric to adult health care providers, from education to employment and from their family home to independent living when possible.
To help patients, families and caregivers understand the many important issues they face prior to and during this period of transition, Nemours has developed a series of videos now available on YouTube. The videos, made possible by a grant from NYMAC (New York/Mid-Atlantic Consortium for Genetics and Newborn Screening Services), cover four main areas:
- Legal/Financial: Addressing health care power of attorney, health surrogacy laws and legal guardianship, estate and long-term planning, and special needs trusts.
- Residential: Discusses the variety of residential programming available to people with disabilities in the adult world and how to make sure young adults are registered with the right services in their state.
- Vocational: Offers guidance to make sure young adults get the most out of high school and are aware of their options, including post-secondary education, job training programs, day programs and competitive employment. Vocational rehab services, adult disability resource centers and family-to-family information networks are also addressed.
- Medical Self-Management: Describes ways for young people to be more involved as they move from the pediatric to adult health care world, including what skills they will need to be successful and how being an adult patient will be different from their pediatric experience.
Watch the videos on YouTube at:
Legal and Financial:
After High School
Where to Live:
Thought we would share this message with our friends and partners in celebration of International Day for Persons with Disabilities…
Statement attributable to the President of the General Assembly
United Nations, New York, 3 December 2013
Over 1 billion persons throughout our world are disabled. On this International Day, the global community has come together to promote awareness and mobilize support for the inclusion, at all levels, of all persons with disabilities.
Disabled people make up the largest and most disadvantaged minority in the world –nearly 15 percent of the world’s population. The majority of disabled persons across the globe are from developing countries. Many of them live in poverty, face discrimination, and are denied basic opportunities for growth.
On September 23 2013, under my leadership, the United Nations General Assembly convened the historic first-ever High-level Meeting on Disability and Development, and adopted a landmark outcome document aimed at creating a fully disabled-inclusive society as a part of the Post-2015 Development Agenda.
This year under the theme “Break Barriers, Open Doors: for an inclusive society and development for all,” the international community is calling for a global effort to make physical environments, transportation and information accessible to everyone and to change attitudes that fuel stigmatization and discrimination. What the global community needs now are tools for action and change, in order to realize an inclusive society where everyone’s rights are protected and equal opportunities are supported.
I call on all Member States to move forward in this direction. The new landmark outcome document sets the vision beyond the Millennium Development Goals target date and underscores the need for disability-inclusive development strategies in the post-2015 setting. We must take aim at breaking down barriers and creating opportunities so that all human beings can live their lives to the fullest.
A free workshop for parents, caregivers, persons with autism, service providers and educators with speaker Dennis Debbaudt.
Wednesday, November 20, 2013, 6:00 – 8:00 pm
Center for Disabilities Studies, University of Delaware
461 Wyoming Road, Newark, DE 19711
Thursday, November 21, 2013, 1:00 – 3:00 pm
Delaware State Fire School
1461 Chestnut Grove Road, Dover, DE 19904
Registration is FREE, but space is limited! To register for one of the above workshops, follow this link: http://bit.ly/1aym20D.
Continue reading Emergency Preparedness for Individuals with Autism and Related Disorders