Accessibility Options

Give us your feedback
logo

Contact Information

Center for Disabilities Studies
University of Delaware
461 Wyoming Road
Newark DE 19716
Phone: 302-831-6974
TDD: 302-831-4689
Email: info@gohdwd.org

Mark’s Story

Meet Mark. He rolls in on 4 wheels & helps med students learn to treat him like anyone who walks in on both feet.
View the video

Promoting Health and Preventing Disease for People with Disabilities

Webinar to Focus on the Unique Role of CDC’s Division of Human Development and Disability
Episode 3: Differences in Health Status for People with Disabilities
Tuesday, January 24th from 4:00- 5:00 pm EST
CDC recognizes the challenges that people with disabilities face in achieving and maintaining good health.  This webinar will describe some of the health indicators reflecting these challenges; present overviews of selected programs that offer promising approaches to improving them in achieving and maintaining healthy weight for people with disabilities; and outline a strategy for expanding these efforts.
Panelist: Michael H. Fox, Sc.D., Associate Director of Science, Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
Register for this webinar at https://www2.gotomeeting.com/register/631679826.

Center Conducts Statewide Needs Assessment on Autism

The Center for Disabilities Studies is conducting a statewide needs assessment survey for families and individuals with Autism Spectrum Disorders (ASD). The needs assessment, which includes a survey and listening sessions, will be used to inform a statewide planning process to improve the system of services to individuals with ASD. Parents, guardians and individuals with ASD are encouraged to complete a survey to share their opinions about the quality of the health and education services they receive, as well as the factors that influence their life or the life of their child. The anonymous survey will take about 15 minutes to complete. Families and individuals are also invited to join one of the listening sessions that will take place around the state in Newark, Middletown, Dover and Georgetown in January and February 2012. Dinner and a stipend will be provided to participants. If you are interested in participating in a listening session or if you have any questions about the survey, please contact Annalisa Ekbladh at 302-831-0626 or annalisa@udel.edu.

 

Health Disparities Chart Book on Disability and Racial and Ethnic Status in the U.S.

Relatively little research has been conducted comparing the health of people with disabilities to that of people from racial and ethnic minority groups. However, research has consistently documented that, as a group, people with disabilities experience worse health than the general population. The basic purpose of this chart book, produced by the Institute on Disability at the University of New Hampshire, is to answer the question of whether working age (18-64) people with disabilities in the United States experience health disparities similar to those experienced by members of racial and ethnic minority groups in the United States. People with disabilities have the least desirable prevalence rates for ten of the fourteen selected health indicators.
http://www.gohdwd.org/documents/Health%20Disparities%20Chart%20Book_080411.pdf

 

Delaware Adapted Sports Club launches new program

The Delaware Adapted Sports Club is hosting Rolling Strong, aimed at promoting physically active lifestyles for youth with physical disabilities aged 6-18 years by enhancing their sports and social skills in a positive learning environment. Space is very limited and currently limited to students with physical disabilities using a manual wheelchair. These free sessions begin Thursday, November 10 at 6:15 p.m. in Newark, DE. Register and learn more at https://delaware.qualtrics.com/SE/?SID=SV_3reXFfESxzielBa. For specific questions, contact Iva Obrusnikova, Ph.D. at obrusnik@udel.edu or 302-831-8032.


 

Reducing Health Disparities with Improved Data Collection

New Refined Data Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status

The Department of Health and Human Services on Oct. 31, 2011, published final standards for data collection on race, ethnicity, sex, primary language and disability status, as required by Section 4302 of the Affordable Care Act.

Identifying disparities and effectively targeting and monitoring efforts to reduce them has been limited by a lack of specificity, uniformity and quality in data collection and reporting procedures. Consistent methods for collecting and reporting health data will help us better characterize and compare the nature of health problems in underserved populations. They will apply to self-reported information only. The law also requires any data standards published by HHS comply with standards created by the Office of Management and Budget (OMB).

The standards, effective upon publication, apply to population health surveys sponsored by HHS, where respondents either self-report information or a knowledgeable person responds for all members of a household. HHS will begin implementation of these new data standards in all new surveys and at the time of major revisions to current surveys.

Read more and see the new six-question data set for disability at http://minorityhealth.hhs.gov/templates/browse.aspx?lvl=2&lvlID=208.

Promoting Health and Preventing Disease for People with Disabilities: CDC’s Public Health Approach to Disability


Join us for a Webinar on Tuesday, October 25.

Space is limited.
Reserve your Webinar seat now.

A free, 4-part webinar series co-sponsored by the American Association on Intellectual and Developmental Disabilities (AAIDD) and the American Association on Health and Disability (AAHD)

Episode 1: CDC’s Public Health Approach to Disability Tuesday, October 25, 2011, 4:00pm Eastern/3:00pm Central/1:00pm Pacific

This first webinar will provide an overview of CDC’s public health approach to disability. Beginning with a brief history of disability and public health, presenters will discuss different models of disability, and the application of public health surveillance, research, and policy to disability. DHDD’s approach is one of including persons with disabilities in mainstream programs where possible, and use of cross-disability and condition-specific approaches where necessary. Attendees will be engaged in a dialog on best practices in inclusion of disability issues in public health and needs for training in health and public health professions.

Panelists:
Gloria Krahn, PhD, MPH, Director of the Division of Human Development and Disability at the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention

Vince Campbell, PhD, Chief Disability and Health Officer and the liaison from the National Center on Birth Defects and Developmental Disabilities’ Division of Human Development and Disability to the Office of the Associate Director of Program, Centers for Disease Control and Prevention

Watch for Episodes 2-4 of this Important Webinar Series:

Episode 2: CDC’s Life Course Model for children and young adults with chronic conditions (November 2011)

Episode 3: Differences in Health Status for People with Disabilities: CDC’s Healthy Weight Initiative (January 2012)

Episode 4: CDC’s Roadmap for Improving the Health of People with Disabilities (February 2012)

Register now!

 

Delaware campaigning to boost enrollment in Text4Baby

Pregnant women and new moms get free health text messages. Text “BABY” to 511411 or go to www.text4baby.org. TEXT4BABY state enrollment contest ends 10/20. Delaware is so close to ranking in the top 3 for registered moms. Share this message and get more moms connected! Learn more at http://www.gohdwd.org/health-care/devscreen/text-4-baby/ or contact Karen Zalewski at  (302) 831-6839 or karenz@udel.edu.

State of Delaware Emergency Preparedness Voluntary Registry-Special Needs Registration

About the Voluntary Registry

The Delaware ‘911’ emergency system and the Delaware Emergency Management Agency (DEMA) welcome you to the Emergency Preparedness Voluntary Registry for citizens who have special needs. ‘911’ and DEMA in collaboration with other agencies, both state and non-state, have developed this Voluntary Registry to help you prepare for an emergency event before it happens.

Local and state emergency planners and first responders will use the information gathered from this site to plan for local and state emergencies. The ability to plan ahead will help emergency personnel to better serve the community at times of crisis such as: snow, floods, fire, tornadoes, or events that involve terrorism.

How to Register

Complete the paper registration form

To register online please go to:
http://www.de911assist.delaware.gov/

*Note: You can use the PDF document to complete all your info BEFORE beginning the online version. The online version doesn’t let you stop, save and/or return while you are filling out the form.

Continue reading State of Delaware Emergency Preparedness Voluntary Registry-Special Needs Registration

The Emerging Landscape: The Law Related to People with Disabilities and Emergency Preparedness and Response

The Center for Disabilities Studies at the University of Delaware is hosting a two-part webinar series titled  “The Emerging Landscape: The Law Related to People with Disabilities and Emergency Preparedness and Response”  featuring Brian Parsons, Senior Policy Advisor at the Office for Civil Rights and Civil Liberties, U.S. Department of Homeland Security.

View the presentation in videoslides or as a Microsoft Word file.

Part 2: In the second webinar, scheduled for November 3, 2011 from 1:00 p.m. to 2:15 p.m., Brian will explain what emergency managers should know about civil rights requirements regarding individuals with disabilities in preparedness, response and recovery activities.  He will address legal principles including accessibility, integration, inclusion, effective communication and program modification.  The presentation will enable participants to better understand expectations about full and equal access by individuals with disabilities, know how to involve individuals with disabilities in community preparedness, and see how integration will improve safety and health outcomes during disasters.  This information will be of interest to emergency managers and public administrators.

Reserve your seat for the November 3 webinar now at: https://www2.gotomeeting.com/register/597298194.

You may access the webinar’s audio content via your computer speakers or, alternatively, by telephone. If you select the last option, you will be given a telephone number to call. Please note: You will incur your carrier’s customary long-distance charges if you select this option. This is not a toll-free number.

Continue reading The Emerging Landscape: The Law Related to People with Disabilities and Emergency Preparedness and Response