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Contact Information

Center for Disabilities Studies
University of Delaware
461 Wyoming Road
Newark DE 19716
Phone: 302-831-6974
TDD: 302-831-4689
Email: info@gohdwd.org

ARC webinar series focuses on health and disability

ARC Health Meet Webinar Series

Medical Diagnostics and Health Care Justice

Wednesday, July 30, 2014 at 2:00 p.m. (EDT)

Speakers: David Capozzi, Mary Lou Breslin, Rex Pace

Join this one- hour discussion on medical diagnostics and health care justice, with leaders from the US Access Board and the Disability Rights Education & Defense Fund. Attendees will learn updates on the current medical diagnostics rule as well as how to educate others in their communities about health care provider misconceptions and stereotypes.

Register for this session.

For a complete listing of archived webinars in this series, visit the recorded session section of the ARC website.  For more information, contact Kerry Mauger at mauger@thearc.org.

Delware State Health Improvement Plan: Comments Invited

The Delaware Division of Public Health (DPH) wants your input on Delaware’s first State Health Improvement Plan (SHIP).
DPH recently worked with a broad spectrum of non-profit and medical provider partners to create a draft statewide health assessment. The assessment was then used to develop an improvement plan – goals for our most important health needs.
 
The process led to two priority goals:
·   To assure an infrastructure necessary to increase the adoption of healthy eating and active living; and
·   To improve access to mental health and substance abuse services and supports to include prevention, early intervention, and treatment for all Delawareans.
 
Efforts now will be devoted to building a work plan to address these two goals.
 
“The community members that worked on the State Health Improvement Plan should be congratulated for developing important goals that if implemented will significantly improve the health of Delawareans,” said Dr. Karyl Rattay, DPH director. “Now we need to make sure that progress is made toward implementing those goals.”
 
We invite comments on the SHIP through June 30, 2014. Comments can be provided by health providers and agencies, as well as the interested public. Visit www.dhss.delaware.gov/dhss/dph/  and scroll down to the “How Do I” Section or go directly to http://www.dhss.delaware.gov/dhss/dph/shaship.html. For questions, please call 302-744-4703.
 

Environmental Factors for Individuals with Disabilities

The American Public Health Association Disability Section will be conducting their third webinar in this series.  The purpose of these webinars is to promote learning, to provide an opportunity for students and Disability Section members to share their research throughout the year!

Wednesday, May 28, 2014, 2pm EST
Register at: https://thearc.webex.com/thearc/k2/j.php?MTID=t3ebd7fde4e83afa625e88b1ee787cdca
Once you have registered, you will receive an email with details about how to access the webinar.

This webinar will focus on Environmental Factors for Persons with Disabilities. The moderator of this webinar is Andy Imparato, JD. Andy is the Executive Director of the Association of University Centers on Disabilities (AUCD) located in Silver Spring, MD, where he works to advance policy and practice through research, education, leadership, and services for and with individuals with developmental and other disabilities, their families, and communities.

Michaela Schenkelberg, MPH, is a doctoral student in Exercise Science at the University of South Carolina working in the Children’s Physical Activity Research Group. Her research is focused on physical activity promotion in preschoolers, and identifying the influences on physical activity of children with Autism Spectrum Disorders.

Mara Nery-Hurwit, MS, is a doctoral student in Exercise and Sport Science, Movement Studies in Disability, and a master of Public Health student in Health Promotion and Health Behavior at Oregon State University. Her research primarily focuses on physical activity and health behavior interventions for adults with disabilities.

Natasha Spassiani, is a PhD Candidate in the Disability Studies Department at the University of Illinois at Chicago. She is currently completing her dissertation, which is an exploratory case study examining the factors
associated with sustaining community-based health initiatives for people with intellectual/developmental disability (I/DD) living in group homes. Natasha’s research interests include health and community participation for people with I/DD and participatory action research because it ensures that people with I/DD are actively involved in the research process.

APHA Disability Section, hosted by: The ARC for People with Intellectual and Developmental Disabilities

Inclusive Health Promotion Strategies

Wednesday, April 16, 2014: 2:00 pm – 3:00 pm

This webinar will provide attendees with updates on health promotion and health education efforts which are inclusive of people with intellectual and developmental disabilities, from the perspective of three different University Center of Excellence in Developmental Disabilities (UCEDD)’s.  Attendees will learn about current health promotion resources, strategies for influencing medical school curriculum, and areas where the law meets health care.  Finally, the new HealthMeet resource, Understanding Health and Health Promotion for People with ID (www.iddhealthtraining.org) for trainees and early career professionals will be reviewed.

Nationally renowned speakers on this webinar include:

Susan Havercamp, PhD, is a psychologist and Associate Professor of Psychiatry and Psychology and Director of the Health Promotion and Healthcare Parity program at Nisonger Center, University Center of Excellence in Developmental Disabilities (UCEDD) at the Ohio State University.  She has contributed to health surveillance activities, health promotion programs, and healthcare provider education to improve the health and healthcare for children and adults with disabilities.

Leslie Cohen, JD is the Director of the UA Sonoran University Center for Excellence in Developmental Disabilities (UCEDD), Assistant Professor, Department of Family and Community Medicine, UA College of Medicine and current President of the Board of Directors of the Association of University Centers on Disabilities (AUCD).  Ms. Cohen has substantial responsibility for interprofessional education on disability in the health sciences and expertise in disability law and policy.

Karen Edwards MD MPH is Vice President for Education Training and Research at Westchester Institute for Human Development (WIHD), a University Center for Excellence in Developmental Disabilities (UCEDD).  She is Director of the LEND (Leadership Education in Neurodevelopmental and related Disabilities) Training Program at WIHD and Co-UCEDD Director.  She is a Professor in New York Medical College’s School of Health Sciences and Practice.

Register here!

 

 

5th Annual Caregiver & Respite Conference

You Count!  Don’t Burn Out! 

Easter Seals and the Division of Services for Aging and Adults with Physical Disabilities is hosting the 5th Annual Caregiver and Respite Conference and there’s a new twist. Instead of a full day conference, the conference is structured in two separate sessions – one in the morning and one in the afternoon. Both sessions will include a presentation on “Caring for Yourself as a Caregiver” and a panel discussion about “Recreation as Respite.”  But, (and here’s the exciting part!) each session is designed to address your specific needs – depending on whether you care for a child or an adult. Each session is $10.00 to attend; price includes you and one guest.

Morning Session | 9:00 AM – 12:00 PM (registration starts at 8:30 AM)
 *For anyone caring for a child with special needs or disabilities

Afternoon Session | 1:00 PM – 4:00 PM (registration starts at 12:00 PM)
*For anyone caring for adults with disabilities or seniors with aging conditions

All conference attendees are invited to visit our Resource & Technology Demonstration Center from 12:00 – 1:00 PM to see hundreds of pieces of assistive technology which may be helpful to you as a caregiver.  During that time, you can also meet the speakers and talk with others in the field with information pertinent to you as a caregiver.

Register Now! Questions?  Contact Caitlin Gruber at 302.221.2087 or cgruber@esdel.org.

 

2nd Annual Weight Management Strategies Conference

One Approach Doesn’t Fit All!
The 2nd Annual Weight Management Strategies Conference at Delaware State University is scheduled for Friday, March 21, 2014. Hear obesity experts discuss strategies to treat specific population groups, including children, African Americans and individuals with disabilities. To register, go to http://www.desu.edu/cehpp  Conference sponsors include Nemours, AstraZeneca, the Expanded Food and Nutrition Education Program (EFNEP), and the Delaware Health Fund (DHSS).  Application for continuing education credits has been made for registered dietitians, nurses and social workers.  Questions?  Marianne Carter, 302-857-7309.

Brain Injury Association of Delaware 23rd Annual Conference

The Brain Injury Association of Delaware (biaofde.org) is holding its 23rd annual conference on March 13, 2014 at the Dover Downs Hotel & Conference Center. This full day conference includes four tracks to choose from. Each track includes two educational sessions.

Tracks include: Prevention Learning, Education Learning, Advocacy Learning and Support Learning.

A reduced price of admission is given to families and persons with a brain injury. Scholarships are also available as well as group rates.

For more information, call 1-800-411-0505 or email admin@biade.org.

New Healthy Weight Issue Briefs

Disability and obesity are complex public health challenges, but ones that offer major dividends to our country if effective strategies are successfully applied. The Centers for Disease Control and Prevention has published five new issue briefs that describe what people and organizations can do to help combat obesity among people with disabilities, and assist them in achieving healthy weight and an improved quality of life.

To view the five new healthy weight issue briefs visit http://go.usa.gov/Ba5B or click on one of the following links:

Healthcare Transition for Youth with I/DD: A Review of Research, Policy and Next Steps

Tuesday, January 21 at 2:00 pm – 3:00 pm EST
Presenter: Samantha Crane

In December 2013, the Autistic Self Advocacy Network (ASAN) released a policy brief on addressing the health care needs of youth with autism and other developmental disabilities as they transition to adulthood.

Join this upcoming webinar to learn more as Samantha Crane, ASAN’s Director of Public Policy, discusses concepts from the brief. She will also provide recommendations to ensure that young adults with Intellectual and Developmental Disabilities (I/DD) receive consistent access to quality health care, as well as support in taking on adult levels of autonomy with respect to their own health care needs.

Register here.

 

Seizures: Refractory Seizure Evaluation and Treatment in Adults with I/DD

Wednesday, January 22nd at 2:00 pm – 3:00 pm EST
Presenter: Seth Keller, MD

Adults with intellectual or developmental disabilities often have complex and fragile medical difficulties including seizure disorders. Commonly, seizures are refractory to medication therapy and usage of multiple seizure medications, toxicities, ER visits and associated injuries may occur. The presentation will review these various challenges as well as the difficulties that also contribute to problems with diagnosis, testing, and therapies. Recommendations will be made to help ensure that better outcomes are achieved as well as improvements in quality of life.

Register here.