Is your child searching for something fun to do this summer? Concerned some camps might not be accessible or the best “fit” for your child? Well, look no further! A variety of summer camps in the local tri-state area cater to the needs of a diverse range of children, including children with disabilities. Explore the vast array of experiences available this summer at the link below to see if one is the right choice for your child. Fun, sun, and lasting memories await!
The Delaware Division of Public Health is conducting a survey of parents and caregivers of children and youth (0-25 years of age) with special health care needs. This survey hopes to find out about your children’s health care needs, and your experiences with the services that are available to support those needs.
DPH wants to ensure that parents of children and youth with special health care needs have access to support services, especially as it relates to health. This includes children with conditions like asthma, sickle cell disease, autism, attention deficit disorder, depression, allergies and many others. Your input is critical to improving health and services for children like yours in our community.
Your participation in this survey is voluntary. The survey is completely anonymous, all results will be grouped, and NO personal identifying information will be collected.
You are free to decline any question you do not wish to answer. The survey should take between 15 and 20 minutes online. The online survey will close on April 14, 2015. We hope that you will be able to find a few minutes to complete the survey!
Links in English and Spanish below
English version: https://www.surveymonkey.com/s/CYSHCN_Survey
Spanish version: https://es.surveymonkey.com/s/CYSHCN_Spanish
The Linking Children with Special Healthcare Needs to Dental Providers webinar will take place on Wednesday, February 18 at 1:00 pm ET and is sponsored by the Centers for Medicare and Medicaid Services (CMS). This webinar will address the challenges children with special healthcare needs often face in finding a dentist and the role the Insure Kids Now (IKN) Dental Locator can play in facilitating access. Included in the discussion will be CMS guidelines for collecting and reporting IKN Dental Locator special needs data and highlighting best practices. Please click to register for this webinar.
National Maternal and Child Oral Health Resource Center (OHRC): Products and resources in support of children with special health care needs, developed and supported by the National Maternal and Child Oral Health Resource Center (OHRC), can be found at the following links:
The Delaware Cancer Consortium has brought together all the important information about cancer into one easy place. By visiting www.healthydelaware.org, individuals can learn how to stay healthy—including when to get cancer screenings—and employers, doctors, and other health care providers and cancer consortium members can find resources they need.
Click on the badge below to visit the website and learn more!
The Division of Human Development and Disability at the Centers for Disease Control and Prevention is highlighting a personal story about Justin’s experiences as a person with a disability. Justin supports the Division as a Health Communications Specialist with Carter Consulting, Inc. The personal story chronicles his challenges and barriers that he has faced as a man living with a disability. His story also serves as a reminder that health and employment are connected. To read his personal story, visit http://go.usa.gov/f5Ae .
Justin’s colleagues put an emphasis on making him feel comfortable and respected as a member of a diverse and productive workforce.
The Federal Emergency Management Agency (FEMA) has partnered with the Americans with Disabilities Act (ADA) National Network, let by the Pacific ADA Center, to offer monthly webinars. Webinars will provide an opportunity for emergency managers, people with disabilities, first responders, planners, community organizations, and other community partners to exchange knowledge and information on promising practices in inclusive emergency preparedness for the whole community. Topics will relate to emergency preparedness, disaster response, recovery and mitigation, as well as accessibility and reasonable accommodations under the ADA.
The first webinar in the series will be:
Effective Communications for Deaf and Hard of Hearing
October 9, 2014 at 2:30 p.m.
This session, presented by Candice Alder, Outreach Consultant for the Colorado Commission for the Deaf and Hard of Hearing, will explore how effective communication provisions of the ADA apply in emergency situations. What happens when interpreters aren’t available? What technologies are important to incorporate during the notification, sheltering, and evacuation and recovery stages? Implementation and culturally affirmative communication strategies will also be discussed. Best practices solutions and compliance strategies to provide greater access for persons who are deaf or hard of hearing will be discussed.
To register for this webinar, click the following link, or you may copy and paste it into your web browser:
For more information, including a complete list of monthly webinars, follow the link below:
September is Preparedness Month. Preparing for a disaster before it strikes is essential for all families. For families that include children with special needs, the challenges can be even greater. Read these stories of how real families and caregivers responded to such challenges, and what they learned in the process. http://www.bt.cdc.gov/children/real-stories/index.asp
A training program for caregivers of people with disabilities and frail elders
Thursday, August 28, 10:00 a.m. to 12 noon.
The Center for Disabilities Studies at the University of Delaware
461 Wyoming Road, Newark DE 19716
The Center for Disabilities and the Delaware Division of Public Health will be offering a training for caregivers of people with disabilities. Direct support professionals, group home staff, family members of individuals with disabilities and dental hygienists are invited to attend. Caregivers will learn about:
- The causes of oral health problems.
- Daily mouth care.
- Creating conditions for oral health success.
- Maintaining a healthy mouth in people with disabilities.
There is no fee for this training, but pre-registration is required. Continuing education credit may be available.
Register online at: http://bit.ly/X4OUNk.
For questions or to register by phone, please contact Bhavana Viswanathan at firstname.lastname@example.org or 302-831-8374.
Please let us know if you will need accommodations for this training (e.g., sign language interpreter, Spanish interpreter, large print text, etc.). We will be happy to make these arrangements for you!
Funding for this program is provided by the Delaware Division of Public Health Bureau of Oral Health and Dental Services.
Learn how Delawareans with both hearing and vision loss may qualify for free assistive technology and training that’s available through the federal iCanConnect program.
August 7, 2014, noon to 1 p.m.
Center for Disabilities Studies, Room 132
461 Wyoming Road, Newark
Presenters Sonja Rathel and Karen Latimer of the Center for Disabilities Studies and Melodye May of the Delaware Division for the Visually Impaired will discuss eligibility guidelines and demonstrate how iCanConnect can help its beneficiaries do everything from make a phone call and text to send email and access the Internet.
iCanConnect is part of the National Deaf-Blind Equipment Distribution Program. It is administered in Delaware by the Center for Disabilities Studies. Project partners include the Delaware Division for the Visually Impaired, the Delaware Program for Children with Deaf-Blindness, and the Delaware Assistive Technology Initiative.
Please register online or call Katie Hoffman at 302-831-3632.
Accommodations: Requested accommodations will be provided.
Brown bag lunch welcome. The program will start promptly at noon.
ARC Health Meet Webinar Series
Medical Diagnostics and Health Care Justice
Wednesday, July 30, 2014 at 2:00 p.m. (EDT)
Speakers: David Capozzi, Mary Lou Breslin, Rex Pace
Join this one- hour discussion on medical diagnostics and health care justice, with leaders from the US Access Board and the Disability Rights Education & Defense Fund. Attendees will learn updates on the current medical diagnostics rule as well as how to educate others in their communities about health care provider misconceptions and stereotypes.
Register for this session.
For a complete listing of archived webinars in this series, visit the recorded session section of the ARC website. For more information, contact Kerry Mauger at email@example.com.